Sunday, July 12, 2009

Wish

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Upon arrival at exit 14W on I-89 North on Thursday evening Will spotted a rainbow in the sky. We were looking at it as we circled of the exit ramp and the picture above is what I was able to capture of what remained from the Sheraton parking lot. After first spotting it Will quickly said "Daddy...quick! Make a WISH!" and he then said "I wish to go back to Disney....no wait! I wish that I love Daddy!"

He made this same wish the past two times we stayed at the Sheraton as they have a fountain in the hotel and he always asks to throw coins in it. The first time I heard him say this, in such a loving tone, I nearly fell over. The next time we visited the fountain his wishes consisted of:

- I wish I loved Daddy
- I wish I loved Mommy
- I wish I could stay in Vermont FOREVER (he shouted the forever part, hence the caps)

He always asks me to also make a wish each time. I just have one wish that I make for all such occasions. It isn't to save Will, or to cure cancer, or to win the lottery, or for 'health'.

Instead I simply wish for happiness for my family.

That may mean different things for each member and come from different places of hope and desire. However, all I can hope for as a father and a husband is that at the end of each day my family is happy. If we can managed that then I will have achieved surpassed everything else I could ever hope for.

At times it is difficult to not focus on certain larger issues you'd like to change as this can make it exceedingly difficult to be happy. I know I have had a hard time doing this lately by focussing on all the things I dislike about our current situation instead of focussing on the happiness in each day and how Will & Evelyn can so easily discover it in the simplest everyday things.

Friday, July 10, 2009

Over my head

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Will got his chemo today and we confirmed that we Will be scanning in 3 weeks time, not 2, as per study requirements.

We made it home at around 7pm tonight after a fun trip to Shelburne Farm. That trip would have been a walking disaster instead of a great afternoon if not for a huge assist from the Dudley girls who took turns keeping an eye on Will or Ev as I watched the other as they both had their interest captured by different activities in vastly different areas. Will has so much fun with them as well so it was a good day for him. I was in over my head over the past 30 hours or so and am happy to be back home.

I am glad we are home, everyone is OK, no one got hurt, and nothing was (terribly) broken.

Thursday, July 09, 2009

No wake up call needed

The alarm on my phone is set and will be going off in 4 hours so that I can give Will his meds. At this rate, I may not need it as it appears no one is going to sleep. Currently Will is on his leapster (with headphones) and Ev is tearing the room apart. It was a 4 hour ride up with rush hour in Boston so we got here late.

We, of course, had to go for a swim and then grabbed some LATE dinner. The plan for tomorrow is breakfast before our 9am arrival at clinic and then hitting either the aquarium or the farm before going home. I can't wait to see what Ev has in store for us tomorrow in clinic...I hope no one gets hurt.

Bedtime


Bedtime, originally uploaded by Will's_Dad.

Outside Manchester


Outside Manchester, originally uploaded by Will's_Dad.